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Bojana Mirosavljevic, ZIVOT (LIFE) Patient Organisation, Serbia & Balkan Region

Bojana Mirosavljevic is the Director of Patient Advocacy Strategy at ICON, and has 15+ years of Rare Disease Patient Advocacy Strategy experience focused on the clinical development process​. Bojana has extensive experience in creating and implementing Patient Advocacy strategies for rare diseases in pharma and contract research organisations (CROs). Bojana is a chemist and embryologist specialised in pre-implantation genetic testing (PGT). ​

Bojana is the Founder and President of ZIVOT (LIFE), a Patient Organisation operating in Serbia and the Balkan region. She successfully lobbied for Zoya’s law, which increased access to early diagnostic and newborn screening in Serbia. ​ She is a certified EUPATI Patient Expert for Rare Diseases and was a recipient of the prestigious EURORDIS Black Pearl Award. ​

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