Begonya Nafria is Head of Department at Sant Joan de Déu Chidren’s Hospital (Spain). She has long experience in the field of patient and family involvement in research initiatives. She has also a personal story as a caregiver and patient advocate because she is the sister of an adult with cerebral palsy.
Her areas of expertise are paediatric patient involvement in research, and specifically in the field of clinical trials. She is currently a PhD student focusing on children’s rights with respect to their participation in clinical studies.
Other relevant background of Begonya’s profile includes: Fellow of EUPATI (first cohort), Coordinator of eYPAGnet (European Young Patients Advisory Group Network – www.eypagnet.eu), Coordinator of Kids Barcelona (www.kidsbarcelona.org), member of Children’s Medicines Working Party of EFPGCP, chair of the working the working group of cross-border access to clinical trials at EmprEMA, and member of the EUPATI Board.
Coordinator of the cross-cutting theme of patients’ involvement in Conect4Children project (pan-European paediatric clinical trials network).
